What celebrities have hEDS?

Several celebrities, including Billie Eilish, Jameela Jamil, Selma Blair, Halsey, Sia, Lena Dunham, and Yvie Oddly, have Ehlers-Danlos Syndromes (EDS) or hypermobility, using their platforms to raise awareness for the often-invisible chronic conditions involving faulty connective tissue, leading to issues like joint pain, dislocations, fatigue, and chronic pain. Other figures like Camille Schrier (Miss America 2020) and Cherylee Houston (actress) also openly live with EDS.

What celebrities have hypermobile EDS?

Yes, several celebrities have publicly shared their EDS diagnosis. Some notable figures include actress Selma Blair, singer Sia, and pop star Halsey. Other well-known individuals, like Lena Dunham and Jameela Jamil, have hypermobile EDS (hEDS), which is the most common form​.

Does Billie Eilish have Ehlers-Danlos?

Yes, Billie Eilish has been open about her diagnosis with hypermobile Ehlers-Danlos Syndrome (hEDS), a genetic connective tissue disorder that causes joint pain, dislocations, and other chronic issues, which she has discussed impacting her body and career, particularly her dancing aspirations. She also experiences related conditions like POTS (Postural Orthostatic Tachycardia Syndrome) and MCAS (Mast Cell Activation Syndrome).
 

Can hEDS cause hernias?

There is some preliminary research that suggests that people with hEDS are slightly more likely to have a small hiatus hernia at the lower end of the oesophagus.

How rare is hypermobile EDS?

Hypermobile EDS (hEDS) is the most common type of EDS by far. hEDS accounts for about 90% of EDS cases and is thought to affect at least 1 in 3,100-5,000 people.

Blind Dating My Celebrity Crushes

Does Taylor Swift have EDS?

Fans and media have speculated that Taylor Swift might have hypermobility due to her flexibility and comments about being "double-jointed." While Swift has not confirmed any diagnosis, her close friendship with Lena Dunham suggests that she is aware of EDS even if she doesn't have it.

Why is EDS so controversial?

Ehlers-Danlos Syndrome (EDS), particularly the common hypermobile type (hEDS), is controversial due to diagnostic challenges, especially the lack of a specific genetic test, leading to reliance on subjective clinical criteria like the Beighton Score, and confusion with Hypermobility Spectrum Disorder (HSD). Medical skepticism arises from the vast symptom overlap with other conditions, physician lack of awareness, and historical misdiagnosis, often leaving patients feeling dismissed ("gaslit") and delaying care for a condition that impacts millions but is often misunderstood within the broader medical community.
 

How bad can hEDS get?

Many people with hEDS also have headaches and brain fog. Some people with hEDS may experience serious issues such as gastrointestinal disorders, cardiac conditions and surgical complications as well.

What exercises should hypermobile avoid?

For hypermobility, avoid exercises that push joints to their end range (like deep stretches, locking knees/elbows), high-impact activities (running, jumping), contact sports (football, rugby), and heavy, uncontrolled weightlifting; instead, focus on joint stability with controlled, low-impact movements (swimming, Pilates) and gentle strengthening, always prioritizing proper form and avoiding pain.
 

Do people with EDS gain weight?

Yes, Ehlers-Danlos Syndrome (EDS) can contribute to weight gain through factors like reduced physical activity due to pain and fatigue, gastrointestinal issues affecting metabolism, autonomic dysfunction (dysautonomia), potential medication side effects, and sometimes hormonal imbalances, even though weight loss is also common due to digestive challenges, making weight management complex for many with EDS. 

What is Billie Eilish diagnosed with?

Billie Eilish has been diagnosed with Tourette syndrome (TS), a neurological disorder causing involuntary movements and sounds (tics), which she revealed she was diagnosed with at age 11, and also discussed having issues with hypermobility. Her tics, like jaw clicking, eyebrow raising, and ear wiggling, can be exhausting but often subside when she's focused on performing or moving. She has openly discussed her experiences to raise awareness, noting that while some tics are subtle, they are a significant part of her daily life, though she doesn't tic while performing.
 

What ear problems do people with Ehlers-Danlos syndrome have?

In those affected by Ehlers-Danlos syndrome (EDS), the eardrum—which plays a crucial role in sound transmission between the outer and middle ear—may be prone to abnormalities. These issues can present as perforations or thinning, resulting from compromised connective tissue.

Can obese people have EDS?

The rising prevalence of EDs in people with obesity necessitates integrated approaches to study this comorbidity and to identify and analyze both common and distinct features of these conditions.

What type of EDS does Selma Blair have?

Famous people with EHD. Selma Blair from her Instagram. Selma Blair, an actress, states she has Ehler-Danlos (note the mispelling) in an article found in "https://www.self.com/story/selma-blair-ehler-danlos-syndrome".

How painful is hypermobile EDS?

This study in a large group of EDS patients shows that 1) chronic pain is highly prevalent in EDS and is associated with regular use of analgesics; 2) pain is more prevalent and more severe in patients with the hypermobility type than in those with the classic type and vascular type; 3) pain severity is related to ...

Why shouldn't hypermobile people stretch?

People with very flexible joints shouldn't stretch too much. Overstretching your muscles can further destabilize your joints.

Is it harder for hypermobile people to lose weight?

Reduced Physical Activity: Chronic pain and fatigue can make regular exercise difficult, leading to a more sedentary lifestyle. Slower Metabolism: Some research suggests that people with hEDS may have a slightly slower metabolism, making weight loss more challenging.

What are 7 signs you have hypermobility?

Seven common signs of hypermobility include joint pain/stiffness, frequent dislocations/sprains, chronic fatigue, poor coordination, clicking joints, stretchy skin, and bowel/bladder issues, often seen with excessive flexibility (like bending fingers back) but impacting daily life with instability and tiredness.
 

Can hEDS cause bad teeth?

Implications for oral health care

EDS has the potential to lessen oral health by virtue of increasing the risk of dental decay (caries) as a consequence of the dental anomalies – these can trap food and dental plaque.

What are the organ problems with hEDS?

a risk of organ problems, such as the bowel tearing, the womb tearing (in late pregnancy) and partial collapse of the lung. hypermobile fingers and toes, unusual facial features (such as a thin nose and lips, large eyes and small earlobes), varicose veins and delayed wound healing.

What medication is used for hEDS?

Over-the-counter pain relievers — such as acetaminophen (Tylenol, others) ibuprofen (Advil, Motrin IB, others) and naproxen sodium (Aleve) — are the mainstay of treatment. Stronger medications are only prescribed for acute injuries.

What is the road to 2026 for Ehlers-Danlos Society?

The Road to 2026 is the path and process toward an update of the 2017 International Classification of the Ehlers-Danlos syndromes. The aim of this update is to advance the understanding and management of EDS and HSD on a global scale, reducing the time to diagnosis, and improving care.

What are the mental issues with EDS?

Ehlers-Danlos Syndromes (EDS) are strongly linked to psychiatric disorders, with high rates of anxiety, depression, PTSD, ADHD, and eating disorders due to the profound physical burden, chronic pain, and psychological stress from managing a complex, often invisible, condition. Common psychiatric comorbidities include mood disorders, personality disorders (like Borderline Personality Disorder), substance misuse, and neurodevelopmental conditions, often exacerbated by symptom overlap with other conditions like Postural Orthostatic Tachycardia Syndrome (POTS), leading to misdiagnosis, highlighting the need for integrated care. 

What are lesser known symptoms of EDS?

Lesser-known Ehlers-Danlos Syndrome (EDS) symptoms go beyond joint pain and stretchy skin, including dysautonomia (POTS) causing dizziness, frequent nosebleeds, Mast Cell Activation Syndrome (MCAS), blue sclera, difficulty getting IVs due to "bad" veins, chronic fatigue, brain fog, sensitive skin to adhesives, and gastrointestinal issues like reflux, often presenting as seemingly unrelated problems like easy bruising, poor scarring, or chronic stomach pain that are actually linked to connective tissue issues.